Review of RareConnect

Page reviewed 2016-05-24



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Top 5 Posts by RareConnect

 Date Post Likes Comments Shares
2016-04-27 Safe image.php?d=aqb l1bkbosaefuo&w=130&h=130&url=https%3a%2f%2fwww.facebook Join us in our next WEBINAR on May 4th! Many patient groups ask us how... 93 3 31
2016-05-11 13139371 1092161367493971 7250983875667602552 n Part of the RareConnect team is meeting in Belgrade, Serbia this week to... 72 41 5
2016-04-29 13102620 1084861618223946 8715692603185323015 n Happy Undiagnosed Children's Day! Today is the day to to increase... 42 4 13
2016-05-17 Safe image.php?d=aqdvd w8x3z7xhdm&w=130&h=130&url=fbstaging%3a%2f%2fgraph.facebook "I want to give a warm cyber hug to all the people who are in the s... 53 4 8
2016-05-05 Safe image.php?d=aqdm3nxl8yqej0pg&w=130&h=130&url=fbstaging%3a%2f%2fgraph.facebook Today is World Pulmonary Hypertension Day. Over 80 organizations around... 32 0 15

Unanswered Posts by Others - RareConnect

 Date From Post Comments
2016-05-18 Bonjour à tous ! Mon fils de 9 ans est atteint de Protoporphyrie Erythropoiétique. C'est un... 0
2016-05-13 Have you checked out RareConnect It’s a great organization run by EURORDIS and National... 0
2016-05-12 In the framework of the RARE-Bestpractices project ( on healthcare... 1
2016-05-07 Happy Saturday everyone! Please join us on our RareConnect discussion platform for #Apert... 0
2016-05-03 -- Ενημέρωση Συλλόγων Ασθενών -- Παρακολουθείστε αύριο Διαδικτυακό Σεμινάριο για το πώς να... 0